Additional Resources
UPMC Resources:
University of Pittsburgh Medical Center (UPMC) Neurology and Neurosurgery Services Through our wide-ranging health care network of 20 hospitals, hundreds of doctors' offices, and numerous specialized treatment and surgery centers, UPMC offers many programs and services relating to neurology. For more information about neurology services at UPMC, to find a doctor, or to make an appointment, call 412-647-UPMC (8762) or toll-free at 1-800-533-UPMC (8762). Read More >
University of Pittsburgh Medical Center (UPMC) Center for Assistive Technology (CAT) can provide ALS patients with a bridge to independence and an opportunity to live life to its fullest through assistive devices. Specialized clinics include those involving Wheelchair evaluation, Augmentative communication (computerized speech devices), and other computerized assistive devices. Read More >
Human Engineering Research Laboratories, VA Pittsburgh Healthcare System. Research projects, information on adapting to daily life as a wheelchair user. Read More >
University of Pittsburgh Department of Physical Medicine & Rehabilitation We are worldwide leader of research and development that increases the mobility and function of people with disabilities. Our Mission is to continuously improve the mobility and function of people with disabilities through advanced engineering in clinical research and medical rehabilitation. Read More >
Local/Community Resources:
The Muscular Dystrophy Association (MDA) is a world leader in fighting ALS. The ALS Division of MDA offers a comprehensive range of services and joins in the search for treatments and a cure. Read More >
The ALS Association Western Pennsylvania and West Virginia Chapter The Western Pennsylvania Chapter focuses primarily on helping local patients and families live with ALS while the National Office focuses primarily on research and advocacy. The Chapter supports the National Office through revenue sharing and research contributions. The National Office supports the Chapters by providing up-to-date information and materials. Read More >
Family Hospice and Palliative Care
The mission of Family Hospice and Palliative Care is to provide compassionate, quality comfort care that enhances the lives of people with life-limiting illness and their families. Read More >
Forbes Hospice's team of caregivers offers a compassionate, loving approach to meeting the needs of patients and families. Read More >
Knopp Biosciences Inc. is a biotechnology company with a mission to accelerate the diagnosis and improve the treatment of ALS. Read More >
National Resources:
The ALS Association (ALSA) is a national not-for-profit health organization providing help to those facing the disease through research, patient and community services, public education and advocacy. Read More >
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. NINDS is one of many research centers and institutes that comprise the National Institutes of Health (NIH), which is an agency of the Public Health Service within the U.S. Department of Health and Human Services. Read More >
Project A.L.S. is a not-for-profit organization dedicated to finding and funding treatment and a cure for ALS. Read More >
Patients Like Me is an online community committed to making a difference for patients and their health. Read More >
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being. Read More >
The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers. Read More >
Well Spouse Foundation . . . When one is sick . . . two need help! Read More >
National Association for Home Care (NAHC) is the nation's largest trade association representing the interests and concerns of home care agencies, hospices, home care aide organizations, and medical equipment suppliers. Simply put, NAHC is the one organization dedicated to making home care and hospice providers lives easier. Read More >
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. Read More >
The National Respite Locator Service helps parents, caregivers, and professionals find respite services in their state and local area to match their specific needs. Read More >
